Support M.Y.Head

Donate Your Used iPad or iPhone

wpid-Image-2011-08-16-05-19.jpg
iPads and iPhones open the world, memory, cognitive therapy, and life to a brain injured soldier or civilian. Donate your used iPad or iPhone today!

In short, the iPad and iPhone make it so a brain injured person has a much easier time entering life as fully as possible.

How To Donate
Send your used iPad or iPhone to:

Diocese of Colorado Springs
Chief of Staff
c/o Mind Your Head (this must be on checks note for them to be designated properly)
228 N. Cascade Ave.
Colorado Springs, CO 80903

Please include the USB and charger cord. If you have accessories you would like to include, (covers etc, they are much appreciated).

Do I need to do anything with it first?
You do not need to do anything. When we receive them, we reset them to their original status, which wipes them clean and prepares them for a new user. If you prefer to do this, the steps are simple:

If you backup using iTunes:

Connect to your computer via USB
Select your iPad or iPhone under “Devices”
Select “Restore”

OR

If you backup using iCloud:

Go to “Settings,” “General,” “Reset,” “Erase All Content and Settings.”

THEN
When prompted to set up your information, unplug it and send it to us. It’s that easy. ALl wiped and ready for the person you are giving it to.

How iPads and iPhones Help
Apple is right. The iPad (and iPhone) are magical. They are simple, sleek, intuitive — so much so you can give one to someone who doesn’t remember how to use a computer and they can start using it right away.

For a soldier or civilian with brain injury, an iPad or iPhone is like a wheel-chair for the brain. It rapidly becomes an extension of themselves, helping compensate for the dis-ability that has so deep effected memory and cognitive function.

I know. I use both daily. I use them much like you do. Capture and organize ideas and get them to my computer. Email. Play games. Set reminders to do things I would otherwise completely forget (5 minutes later).

For someone whose brain injury may make it so they are overwhelmed by the sights, sounds, smells, and other normal sensory stimulation of the world, the iPad or iPhone opens up a simple and powerful way to connect with others by whatever means works for them. Email support groups, Facebook, LinkedIn, the next big thing.

This community gave me the strength to go on…

I still remember the blow I absorbed when, in the first year after
Dean’s TBI, we assembled at the Denver VA facility to hear the
pronouncements of the medical staff regarding their opinions about
Dean’s potential for continued recovery. It was very intimidating to me,
to sit in a roomful of doctors and therapists, and listen to what they
had to say.

And it was dismal news… Dean was older (over 60 when he had his fall),
he suffered a severe TBI that complicated matter, he hadn’t progressed
much to date… and the real stunner… of course, he wouldn’t recover
much more because he was fast approaching the 1-year anniversary of his
injury and *everyone* knows that recovery stops after 1-year.

At that point in time, I was naive enough to think the medical
profession knew more than I did about TBI treatment… and perhaps some
do… but, let me tell you, I realized *that* day that I certainly knew
more about Dean and his recovery than those pontificating fools at the
Denver VA.

At the 1-year mark Dean was still in a wheelchair, we were dealing with
horrible, horrible behavioral issues, he was very confused and his
short-term memory and long-term memory were poor, he was
wheelchair-bound. It was a difficult time both physically and
emotionally.

And the Denver VA staff were so certain in their pronouncements that
that was what the rest of his life would be like. It was like letting
the air out of a balloon… deflating hopes and dreams slowly and
inexorably. (Do they all go to school learning how to do this?)

I’m *so* glad that I found this community because this community is what
gave me the strength to go on… to continue to seek whatever treatment
for him that I thought he could benefit from. Therapy continued for a
little while but mostly Dean recovered just by living in the world and
participating more in it. I found lots of puzzles (at the correct
ability levels) for him to work on… as he progressed in assembling
them, I found simple airplane kits, etc… Dean started assuming
responsibility for chores at home. He now empties the dishwasher, he
does our laundry, he works on the lawn, etc.

And now, coming on the 4-year mark, as many of you know, he drives to
the post office to get our mail and is even going to the grocery store
sometimes to pick up milk (and all that entails — finding the correct
brand, handling money, etc.)

In Dean’s recovery there came a point where the burden of therapy and
recovery shifted from the medical community to me. I think that point
came too soon (because it was so frightening to me to shoulder that
burden — without much previous experience), but looking back, when Dean
entered the “real” world, in my mind, I think he made the most
significant improvement. I often didn’t see it at the time but looking
back… it’s amazing what he’s done.

The hardest part is trying to think like a therapist and see what he can
continue to benefit from. It was much easier when I found the solutions
of simple puzzles to engage him… and then the toy aircraft kits… but
now… he needs more… and I am again out of my comfort zone….
searching and looking for something more meaningful… still within his
abilities but stretching them… (and stretching my abilities to help
him!)

Even though the solutions aren’t coming to me as quickly as earlier in
his recovery, ideas still come along… and I try them out on Dean one
at a time. This is life, it’s messy and it’s not cut-and-dried but it’s
still a wonderful life. Dean’s here with me and, when I look back to
those early days when we weren’t sure if he would survive his fall, I
definitely want to be *here* with all it’s difficulties than anywhere
else.

- Lucy (Caregiver) and Dean (Survivor)


“Join” Deacon Patrick to run and raise money

Commit to running your own version of 20 for 20. Perhaps it’s 1 mile for 20 days. Perhaps more. You run them in your own time and place, even as Deacon Patrick runs his (Unfortunately because of brain injury, Deacon Patrick can’t run with others).

Then use this form to reach out, share with family and friends what you are doing and get their financial support to help Mind Your Head help people with brain injury enter life as fully as possible!


Vision: Helping Survivors and Cargivers Build a Long-Term Support Network

This picture is a beautiful example of how the support of community makes all kinds of things possible despite life with brain injury. On the right is Fr. Don, who is patiently awaiting the next opportunity to help me as I baptize our daughter. That is happening within a Mass without music so I can not be overwhelmed by all the sound, with the community accommodating me in a non-standard chair.

One of the things on the list for Mind Your Head Coop to offer is a step by step guide for caregivers and survivors alike on creating and building a long-term support network that can help make life that much easier. Various categories in which to build support networks include:

– education family and friends of the reality of brain injury (getting past their mis-perceptions and expectations)

– caregiver support and sabbaticals on a regular, ongoing basis

– home care

– paperwork/organization

– transportation

– faith

– friendship

– ???

I will be recruiting volunteers to both help create these materials, and to serve as advocates who can walk those in need through them step by step. If you feel called to help make this possible via the power of the internet and video and other technology, please email me.


My family trusts me as the expert about my needs

Most importantly it was you, Patrick who set me on the way to discovering these issues… essentially the controllable aspects for me.

I followed your suggestions for educating my family, and you communicated directly with my husband early on, and since then I have simply been TRUSTED as the person with the most accurate information about my needs. And my family no longer feels hurt by my reactions, especially my withdrawal to recover.

It has been now over 3 years since I first started implementing your advice,

Patrick, and I must thank you again for helping me carve out some pieces of

happiness here and there. Keep up the good work! You are changing lives

every day here!

-ZK


Mind Your Head Progress…

Working on Mind Your Head Co-op — the website tool is now in place, which means I have to get my act together and work with our web guy to make it do what we need it to do. The plans here are amazing. We will have a tool for creating your own custom long-term recovery plan as well as connecting you with an assortment of possible and appropriate products and services to implement that plan. I’m very excited!

Plus 13 miles (10 yesterday, 3 the day before)
Total Mileage: 440.3

Mind Your Head Logo Contest!

Design the new logo for Mind Your Head and win $200.

Deadline:
Submissions must be received by February 22 extended to March 1, 2010, and include the 2 versions described below.

Specs:
2 logos (as described below), each 10 inches at it’s widest or tallest point (whichever is larger) if in print form, or equivalent size at 200dpi if digital form, with a white background (paper) or transparent background (digital). Submission not meeting these requirements may be disqualified.

Legal:
Deacon Patrick is the judge and his decision is final. The winner will be selected by March 1, 2010, and the award given thereafter. All logos submitted become property of Mind Your Head, a ministry of the Diocese of Colorado Springs. By submitting your work, you grant Mind Your Head sole and exclusive copyright.

What I’m looking for
1) Mind Your Head Logo: Connotes hope for long term recovery and living life to the fullest. Vibrant color, artistic style. Maybe it has a head, maybe it doesn’t. Have fun, and show the vibrant zest for life that we live despite (and perhaps because of) our brain injury! Do not include text.

(Most “brain injury” logos show a head, usually very clinical looking, perhaps showing gears for the brain. This is not what I’m looking for.)

2) Shoot the Moon for Brain Injury logo: Some element (or the entire logo) of the Mind Your Head logo, along with the moon. The rest is up to you.

How to Submit your Entry:
Include your name, complete contact information (mailing address, phone, email) and send to:

By email: Deacon Patrick
(I can accept files up to 20mb, so if your file is larger, submit via cd or DVD or file download service)

By mail (for paper and CD/DVD artwork):
Mind Your Head
c/o Office of the Bishop
Diocese of Colorado Springs
228 North Cascade Avenue
Colorado Springs, CO  80903

Mind Your Head

Mind Your Head is a cooperative for brain injury survivors and caregivers to find support and therapy that promotes more fully entering life.

What does this look like? We’re an innovative and living cooperative by brain injury families for brain injury families which uses physical locations, the internet, and home delivery to provide:

Ongoing, innovative, cost effective therapy (cognitive and otherwise)
Support of community
Business incubation and micro-loans for survivors and caregivers
Research via the above for better ways to accomplish therapy, incubation, and support
Funding for all the above

… all for TBI families by TBI families.

If you would like to be involved in creating some aspect of this, right now, please email Deacon Patrick! You can also help us create this vision by donating here (tax deductible).

Email your friends and family to spread the word

Dear Family and Friends,

I am Shooting the Moon for Brain Injury and I’d love your support! Did you know that every 22 seconds someone in America gets a brain injury? That totals 1.4 million people in America every year. Yet brain injury is one of the least known and least understood injuries.

Shoot the Moon for Brain Injury seeks to change that! You can help, and it’s easy.

Shoot the Moon for Brain Injury has a very simple goal: people collectively traveling 1.4 million human-powered miles to raise $100 million for brain injury research and rehabilitation.

You likely already exercise. If so, you can count your miles! Please see http://shootthemoonforbraininjury.blogspot.com/ to learn how to contribute your walking, running, hiking, cycling, or wheel chair miles and help us reach our milage and fundraising goals!

Your generous donation of miles and money is wondrously welcome! $5, 10, 50, 100, 500 or a per mile donation makes a tremendous difference. Here’s the link to donate (tax deductible)
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=8468771

(Many people wisely don’t forward emails — but this one can change lives. Will you please forward it with abandon?)

Running, hiking, walking, and cycling groups welcome!

If you belong to a group that does human powered miles, we’d love to have you join us in making our 1.4 million miles and $100 million goal a reality!

How teams can help:
— spread the word to family and friends! The more who learn about Shoot the Moon, the closer we’ll get to accomplishing our goal!
— Make the suggested donation of $50 or more per participant tracking their miles (if you are a brain injury or survivor or caregiver and that amount is a hardship, we are happy to waive it!).
— Check out our Wish List and help with our mini-projects!
— Raise money among your family and friends!
— Other ideas? We’d love to hear them!

We would love to have your group help us Shoot the Moon for Brain Injury!

Deacon Patrick’s Round the World Progress

Deacon Patrick's Round the World Progress